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MDA
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Добавлен 14 фев 2007
About Muscular Dystrophy Association
Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. For over 70 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. MDA’s mission is to empower the people we serve to live longer, more independent lives.
To learn more visit mda.org and follow us on social media @MDAorg
Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. For over 70 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. MDA’s mission is to empower the people we serve to live longer, more independent lives.
To learn more visit mda.org and follow us on social media @MDAorg
National Postal Workers Day – MDA National Ambassador, Ira Walker
MDA celebrates the members of the National Association of Letter Carriers (#NALC) on #NationalPostalWorkersDay, July 1, 2024, in a message from #MDA National Ambassador, Ira Walker.
Просмотров: 7
Видео
MDA Advocacy Institute: Clinical Trial Diversity
Просмотров 3214 часов назад
Did you know that clinical trials with diverse participants provide more broadly applicable and reliable results that help determine whether critical treatments are safe, effective, and can benefit a wide variety of patients? Unfortunately, too many clinical trials lack a diverse pool of participants, and many are left out of the process. But we can change that. See how by watching the MDA Advo...
Advances in Research and Care for Myasthenia Gravis
Просмотров 3414 часов назад
At the 2024 MDA Myasthenia Gravis Virtual Learning Series, Dr. Srikanth Muppidi, MD (Stanford University), presents information regarding the most recent advances in research and care for MG. This includes receiving an MG diagnosis, traditional and recently approved therapies, and therapies that are currently in development. After Dr. Muppidi’s presentation, he leads a drug development roundtab...
Managing Medications for Myasthenia Gravis
Просмотров 3414 часов назад
Dr. Claire Spahn, PharmD (Stanford University), provides an insightful look at how patients can manage their medications with a Myasthenia Gravis diagnosis, including goals of medical therapy, managing side effects and exacerbations, and drugs to avoid. This presentation is part of MDA’s Myasthenia Gravis 2024 Virtual Learning Series. Thank you to our virtual learning series sponsors, Alexion, ...
Myasthenia Gravis in Children
Просмотров 1914 часов назад
At the 2024 MDA Myasthenia Gravis Virtual Learning Series, Dr. Leslie Delfiner, MD (Montefiore Medical Center) presents information regarding Myasthenia Gravis diagnoses in children, touching on both Autoimmune MG and Congenital Myasthenic Syndrome. She also discusses the Neuromuscular Junction, Care Team Coordination, and resource identification and support for families. Thank you to our virtu...
Myasthenia Gravis Treatment Expectations: Setting the Bar for a Life Without Symptoms
Просмотров 4414 часов назад
At the 2024 MDA Myasthenia Gravis Virtual Learning Series, Dr. Jeffrey Rosenfeld, MD, PhD, FAAN, FANA (Loma Linda University) provided a comprehensive presentation regarding the current treatment landscape of MG, how patients can change their treatment expectations, coping and perspective considerations, and other MG-related topics. Thank you to our virtual learning series sponsors, Alexion, ar...
A Major Step Forward - Celebrating Major Air Travel Reforms
Просмотров 15716 часов назад
In 2023, Madison and Mindy, two courageous advocates, shared with the whole world why we must improve air travel for people using a wheelchair. Now a year later, thanks to them and countless advocates, Congress passed the most sweeping set of air travel reforms in almost four decades. Learn what we accomplished together and see what we must do next to truly make air travel accessible. #Accessib...
Time to Re-Evaluate Becker Muscular Dystrophy
Просмотров 84День назад
This webinar featuring Sumit Verma, MD, of Emory University School of Medicine, will cover the core clinical features and patient-specific phenotypes of BMD, explore the impact of gene-modifying and replacement therapies for related neuromuscular diseases on the BMD treatment landscape, and will explore challenging diagnostic and management scenarios using case examples. This program is support...
MDA Virtual Learning FSHD Updates in Research
Просмотров 13714 дней назад
This MDA webinar held on June 4, 2024 shares updates on the status of current research in FSHD, current care and treatment approaches for FSHD as well as information and resources to help FSHD patients make informed decisions about their care. The featured presenter of this webinar is The featured presenter of this webinar is Rabi Tawil, MD; Professor of Neurology Pathology and Laboratory Medic...
MDA x Magic Wheelchair: Katherine’s Scooby Doo and the Mystery Machine Reveal
Просмотров 4621 день назад
#MDA #MagicWheelchair #ScoobyDoo #MuscularDystrophy #SpinalMuscularAtrophy #SMA #Neuromuscular
MDA Advocacy Institute: FAA Reauthorization Passes
Просмотров 4621 день назад
Join MDA’s Shannon Wood, Mindy Henderson, and Mark Fisher as they talk though all the air travel reforms that will improve the flight experience for people living with disabilities that passed during the FAA Reauthorization.
Accredo's Patient Centric Approach to Rare Conditions
Просмотров 3121 день назад
The objective of this webinar is to outline the range of specialized pharmacy services available to Rare diseases health care providers, emphasizing how these services can support and enhance their patient care efforts, to meet the unique needs of patients with rare neuromuscular conditions.
Becker Muscular Dystrophy A Novel Approach Designed to Protect Muscle
Просмотров 7621 день назад
Becker Muscular Dystrophy A Novel Approach Designed to Protect Muscle
Patient and Caregiver Perspectives on a New Treatment Option for DMD
Просмотров 13221 день назад
Patient and Caregiver Perspectives on a New Treatment Option for DMD
Updates in Research and Treatment Options for Pompe Disease
Просмотров 9221 день назад
Updates in Research and Treatment Options for Pompe Disease
Dutch Bros and MDA partner to End ALS: Drink One for Dane & Brooke!
Просмотров 2621 день назад
Dutch Bros and MDA partner to End ALS: Drink One for Dane & Brooke!
Happy Mother’s Day from MDA with Brooke Eby
Просмотров 2821 день назад
Happy Mother’s Day from MDA with Brooke Eby
MDA Advocacy - Accessible Air Travel - Paul Melmeyer, EVP, Public Policy & Advocacy
Просмотров 1421 день назад
MDA Advocacy - Accessible Air Travel - Paul Melmeyer, EVP, Public Policy & Advocacy
End ALS With MDA - Lou Gehrig Day with MLB Brewers’ Rhys Hoskins
Просмотров 54Месяц назад
End ALS With MDA - Lou Gehrig Day with MLB Brewers’ Rhys Hoskins
A Novel Approach Designed to Protect Muscle in Becker Muscular Dystrophy
Просмотров 170Месяц назад
A Novel Approach Designed to Protect Muscle in Becker Muscular Dystrophy
MDA Advocacy Institute: ALS Policy Updates
Просмотров 50Месяц назад
MDA Advocacy Institute: ALS Policy Updates
MDA Virtual Learning: ALS Series Day 1
Просмотров 124Месяц назад
MDA Virtual Learning: ALS Series Day 1
MDA Virtual Learning: ALS Series Day 2
Просмотров 50Месяц назад
MDA Virtual Learning: ALS Series Day 2
2024 #MDA #SummerCamp #Volunteer #CampCounselor Nicholas 1
Просмотров 42Месяц назад
2024 #MDA #SummerCamp #Volunteer #CampCounselor Nicholas 1
2024 #MDA #SummerCamp #Volunteer #CampCounselor Johanna
Просмотров 52Месяц назад
2024 #MDA #SummerCamp #Volunteer #CampCounselor Johanna
2024 #MDA #SummerCamp #Volunteer #CampCounselor Nicholas 2
Просмотров 23Месяц назад
2024 #MDA #SummerCamp #Volunteer #CampCounselor Nicholas 2
2024 #MDA #SummerCamp #Volunteer #CampCounselor
Просмотров 55Месяц назад
2024 #MDA #SummerCamp #Volunteer #CampCounselor
2024 #MDA #SummerCamp #Volunteer #CampCounselor Zach
Просмотров 27Месяц назад
2024 #MDA #SummerCamp #Volunteer #CampCounselor Zach
2024 MDA Summer Camp Counselor Volunteer, Micaela
Просмотров 32Месяц назад
2024 MDA Summer Camp Counselor Volunteer, Micaela
MDA Virtual Learning: Parenting Challenging Behaviors in Children with Neuromuscular Disease
Просмотров 99Месяц назад
MDA Virtual Learning: Parenting Challenging Behaviors in Children with Neuromuscular Disease
Thanks for uploading. Like cover tunes? If you have a second, I just posted an acoustic cover of Miley Cyrus. As a fellow music lover, I'd love if you would check it out. It's on my channel. Hope you like it!
Thank you for all your hard work.
Thanks for sharing. I've uploaded some new original house beats on my channel. Would love to hear your thoughts 🙏🏼
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All of you really fought that dragon as if you summoned the spirit of Star Platinum from JoJo's Bizarre Adventure
❤️❤️❤️
Keep the content coming buddy 🙏